This is my archive

Resource

Rooted in Humanity: Urgent action framework for care that matters to CMC, families & clinicians

“Rooted in Humanity” is an urgent action framework and guide that uses a “living tree” visual to help care teams and systems rethink how care for children with medical complexity is designed and improved. It centers care around real people and everyday practice while providing clear, practical guidance that supports collaboration…

News

CISWH: Celebrating Another Year of Social Work Leadership in Health

The Beyond 2025 Action HubWe began 2025 with the launch of the Beyond 2025 Action Hub. The Hub provides tools, policy guidance, and accessible analysis to support practitioners, educators, and advocates responding to federal policy activity. It now serves as a resource for those seeking clarity and direction…

News

Families of Children with Medical Complexity Share What Well-Being Means to Them

Meg Comeau, CISWH senior project director and manager of the Powerbuilding and Leadership Lab, and Bethlyn Vergo Houlihan, CISWH senior project director and manager of the Social Work Innovation Lab, describe family perspectives and introduce a new framework for understanding and improving family well-being at the systems level. According to…

Resource

Pediatrics Supplement: The Collaborative Improvement and Innovation Network for Children With Medical Complexity

In this seven-paper journal supplement published in Pediatrics, a group of CMC CoIIN leaders lay out lessons learned over the duration of the project (2017 – 2022), its impact, and the future of its work to improve child quality of life, family well-being and cost-effectiveness of care.

Project

Emergency Preparedness and Response (EPR)

Achievements PREPARE – Partners In Pediatric Readiness, Emergency Preparedness, and Response Education Toolkit and Training This virtual training brings together families and pediatric emergency care coordinators to learn from each other, build trust, and practice real-life skills during an emergency. The PREPaRE Training and Companion Toolkit were co-developed with cross-sector…

Project

Beyond 2025 Action Hub

The Beyond 2025 Action Hub is a growing movement space for social workers, public health practitioners, and community advocates determined to protect our collective well-being, human rights, and shared humanity in the face of persistent policy threats. Anchored in values of equity, dignity, and care, the Hub provides the knowledge,…

Project

Support for Activity-Based Costing

Our team led the first comprehensive analysis of activity-based costing and management (ABC/M) data from Uganda and Tanzania, providing critical insights into how HIV services are delivered and resourced. We analyzed five key HIV services—antiretroviral therapy (ART), HIV testing and counseling, prevention of mother-to-child transmission (PMTCT), voluntary medical male circumcision…

Resource

Pediatric to Adult Care Transition (PACT) Workbook

The transition workbook includes information about 1) Introduction to the Medical Home; 2) Discussion of Medical Conditions and Medications; and 3) Transferring Care to use as a resource and workbook with the primary care provider on an ongoing basis during transition preparation, and to support a new patient visit with…

Resource

Podcast: Team Kentucky’s Telehealth Journey (YouTube Link)

The Collaborative Improvement and Innovation Network to Advance Care for Children with Medical Complexity (CMC CoIIN) had the unique opportunity to study the experiences of health care providers and families of CMC in 2020 as care delivery quickly transitioned to telehealth. Now, as in-person services have returned, reflecting on what…