Under the current One Big Beautiful Bill Act, each state is required to implement new work requirements for certain Medicaid enrollees. Many family caregivers are unable to work while providing needed care for their children’s medical needs. As Medicaid eligibility requirements continue to evolve, many family caregivers have serious questions and concerns about how they might be impacted by these new work requirements.

This flowchart is designed to support Title V children and youth with special health care needs (CYSHN) programs and family leadership organizations that work collaboratively with their state’s Medicaid program in understanding who the new work requirements apply to and who may be eligible for a caregiver exemption.

“Rooted in Humanity” is an urgent action framework and guide that uses a “living tree” visual to help care teams and systems rethink how care for children with medical complexity is designed and improved. It centers care around real people and everyday practice while providing clear, practical guidance that supports collaboration…

The Beyond 2025 Action HubWe began 2025 with the launch of the Beyond 2025 Action Hub. The Hub provides tools, policy guidance, and accessible analysis to support practitioners, educators, and advocates responding to federal policy activity. It now serves as a resource for those seeking clarity and direction…

Meg Comeau, CISWH senior project director and manager of the Powerbuilding and Leadership Lab, and Bethlyn Vergo Houlihan, CISWH senior project director and manager of the Social Work Innovation Lab, describe family perspectives and introduce a new framework for understanding and improving family well-being at the systems level. According to…

The Beyond 2025 Action Hub is a growing movement space for social workers, public health practitioners, and community advocates determined to protect our collective well-being, human rights, and shared humanity in the face of persistent policy threats. Anchored in values of equity, dignity, and care, the Hub provides the knowledge,…

Comprehensive research by the Analytics Hub and KFF shows that PEPFAR’s impact extends well beyond its core mission of fighting HIV/AIDS, influencing a range of health and socio-economic outcomes in low- and middle-income countries (LMICs). Using rigorous methods, we analyzed data from 157 LMICs—including 90 PEPFAR-supported countries—spanning 1990 to 2018.

Every state has a Newborn Screening (NBS) Program which screens newborns for a variety of health conditions, including selected inborn errors of metabolism (IEMs) and other genetic disorders. Individuals with genetic conditions identified through NBS programs often require Modified Low Protein Foods (MLPFs), medical foods, dietary supplements, or other dietary…