Combining sound statistical data with compelling narratives from the personal perspective of those experiencing a problem or who are impacted by a policy decision can also help inspire new champions in the work to improve coverage and financing of care for CYSHCN. This page will discuss the benefits of using…

Care coordination for CYSHCN is a service that links CYSHCN and their families with appropriate services and resources in an effort to achieve good health.

This guide is designed to provide basic information, action steps and deadlines to help young adults in Florida stay focused and on track with health insurance.

This Catalyst Center policy brief describes the impact of the CommonHealth program and its relevance to the Massachusetts health care reform experience.

Family advocacy efforts coupled with legislative support resulted in the creation and implementation of a Medicaid Buy-in program for families raising children with disabilities in Texas. 

As the possibility of national health care reform became a reality, the Catalyst Center identified three things children with special health care needs would need: Coverage that is universal and continuous, adequate, and affordable. 

Previous Catalyst Center calculations of costs per child for children with disabilities eligible for Medicaid coverage under the Family Opportunity Act were derived from Congressional Budget Office (CBO) estimates. In this revised estimate, we use information from the Medicaid Statistical Information System (MSIS) State Summary Datamart. 

Having health insurance doesn’t automatically protect families of children and youth with special health care needs (CYSHCN) from financial hardship. In the first edition of Breaking the Link, produced in 2009, the Catalyst Center identified three pathways that lead to financial hardship and medical debt, with examples from the lives…

Nationwide, there is growing interest in the use of care coordination as an integral component of comprehensive, quality care provided within the medical home model for children and youth with special health care needs (CYSHCN). A broad range of stakeholders – family members, advocates, state Title V Children with Special…

Mandated benefits are health care benefits or services that, with some important exceptions) private health insurers must cover. Every state mandates at least some health benefits, depending on emerging issues in that state.