Having health insurance doesn’t automatically protect families of children and youth with special health care needs (CYSHCN) from financial hardship. In the first edition of Breaking the Link, produced in 2009, the Catalyst Center identified three pathways that lead to financial hardship and medical debt, with examples from the lives…

The public health emergency resulting from the COVID-19 pandemic has real implications for state Title V programs as well as families raising children and youth with special health care needs (CYSHCN). These fact sheets address a variety of relevant topics, such as Medicaid and CHIP programs and the CARES Act. 

En español Created by the National Center for Medical Home Implementation and the Catalyst Center, these four plain language fact sheets, “Your Child’s Health and the Affordable Care Act,” explain specific provisions of the Affordable Care Act which benefit children and youth with special health care needs. On…

En español Created by the National Center for Medical Home Implementation and the Catalyst Center, these four plain language fact sheets, “Your Child’s Health and the Affordable Care Act,” explain specific provisions of the Affordable Care Act which benefit children and youth with special health care needs. On…

En español Created by the National Center for Medical Home Implementation and the Catalyst Center, these four plain language fact sheets, “Your Child’s Health and the Affordable Care Act,” explain specific provisions of the Affordable Care Act which benefit children and youth with special health care needs. On…

Leverage Opportunities + Speak the Medicaid Language: A Workbook for Title V focuses on Medicaid as an important element of the system of services for Children and Youth with Special Health Care Needs (CYSHCN), as it is the single largest payor for CYSHCN and provides a robust benefits package for…

This care roadmap provides families with contact information for each of their providers and services along with family support resources.

This document contains question prompts for care coordinators to ask during the intake visit. These questions help the care team to get a good picture of the child and their family, along with their strengths and needs.

This form prompts families to think about concerns, priorities, and unmet needs for their child before their care coordination intake visit.

This tip sheet offers advice and steps for selling a healthcare quality improvement project to potential partners. Tips include ways to focus on the outcome, be clear about “what’s in it for them,” share the history of the project, listen to the potential partner, offer to shape the environment, and…