This is my archive

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The Affordable Care Act and Children with Special Health Care Needs: An Analysis and Steps for State Policymakers

The Affordable Care Act (ACA) provides states with important tools to help children and youth with special health care needs (CSHCN) and their families access coverage that is universal and continuous, adequate and affordable. This paper developed by the National Academy for State Health Policy (NASHP) for the Catalyst Center…

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Dancing with Data: Using data to support your message

Combining sound statistical data with compelling narratives from the personal perspective of those experiencing a problem or who are impacted by a policy decision can also help inspire new champions in the work to improve coverage and financing of care for CYSHCN. This page will discuss the benefits of using…

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Care Coordination in a Statewide System of Care: Financing Models and Payment Strategies

Care coordination for CYSHCN is a service that links CYSHCN and their families with appropriate services and resources in an effort to achieve good health.

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Health Care Reform and the Massachusetts CommonHealth Program: An Important Foundation to Build on for Children with Disabilities

This Catalyst Center policy brief describes the impact of the CommonHealth program and its relevance to the Massachusetts health care reform experience.

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The Essential Components of Health Care Reform for Children with Special Health Care Needs (CSHCN)

As the possibility of national health care reform became a reality, the Catalyst Center identified three things children with special health care needs would need: Coverage that is universal and continuous, adequate, and affordable. 

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First Edition: Breaking the Link Between Special Health Care Needs and Financial Hardship

Having health insurance doesn’t automatically protect families of children and youth with special health care needs (CYSHCN) from financial hardship. In the first edition of Breaking the Link, produced in 2009, the Catalyst Center identified three pathways that lead to financial hardship and medical debt, with examples from the lives…

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Designing Evaluation Studies of Care Coordination Outcomes for Children and Youth with Special Health Care Needs

Nationwide, there is growing interest in the use of care coordination as an integral component of comprehensive, quality care provided within the medical home model for children and youth with special health care needs (CYSHCN). A broad range of stakeholders – family members, advocates, state Title V Children with Special…

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Mandated Benefits: Essential to Children and Youth with Special Health Care Needs

Mandated benefits are health care benefits or services that, with some important exceptions) private health insurers must cover. Every state mandates at least some health benefits, depending on emerging issues in that state.

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Payer of Last Resort: Medical Debt and Financial Hardship Among Families Raising Children and Youth with Special Health Care Needs

Financial hardship is common among families raising CYSHCN. This Catalyst Center policy brief describes the three distinct but interconnected pathways.