This guide is designed to provide basic information, action steps and deadlines to help young adults in Florida stay focused and on track with health insurance.

Family advocacy efforts coupled with legislative support resulted in the creation and implementation of a Medicaid Buy-in program for families raising children with disabilities in Texas. 

Having health insurance doesn’t automatically protect families of children and youth with special health care needs (CYSHCN) from financial hardship. In the first edition of Breaking the Link, produced in 2009, the Catalyst Center identified three pathways that lead to financial hardship and medical debt, with examples from the lives…

Nationwide, there is growing interest in the use of care coordination as an integral component of comprehensive, quality care provided within the medical home model for children and youth with special health care needs (CYSHCN). A broad range of stakeholders – family members, advocates, state Title V Children with Special…

Legislative Policy Briefing

Mandated benefits are health care benefits or services that, with some important exceptions) private health insurers must cover. Every state mandates at least some health benefits, depending on emerging issues in that state.

Financial hardship is common among families raising CYSHCN. This Catalyst Center policy brief describes the three distinct but interconnected pathways. 

Maternal and Child Health Town Hall meeting, American Public Health Association annual meeting, Boston, MA.

This guide is designed for policymakers, advocates, legislators, consumers, family members, and providers – in short, for anyone interested in financing care for children and youth with special health care needs at the state level, and in particular through the Medicaid program.

This interactive chartbook provides data on carefully selected indicators of health coverage and health care financing for CYSHCN in every state plus DC and Puerto Rico.