CoIIN State Team Work: Massachusetts
Improving the process of shared surgical decision-making, peri-operative preparation, and care coordination for children with medical complexity and their families
Lead Organization: Massachusetts Department of Public Health Division for Children and Youth with Special Health Needs (Title V) and Boston Children’s Hospital
Clinical Site: Boston Children’s Hospital Complex Care Service
Project
The Massachusetts’ CoIIN state team aims to improve the surgical experience of children with medical complexity undergoing surgery at Boston Children’s Hospital. Together, they work to enhance communication between providers and families, identify pre-surgical needs of children, and empower families to engage with their medical teams.
They are accomplishing these goals by creating and implementing a surgical plan of care, engaging families in a coordinated medical home system, and utilizing a “Get To Know Me” form that families fill out to inform care teams about the individual needs of their child.
Outcomes
To date, Massachusetts has worked in conjunction with families to develop and implement this surgical program, titled ENGAGE, which includes the use of care coordination, parent-created forms, and a shared plan of care to support children undergoing orthopedic surgeries.
