CoIIN State Team Work: Texas
Embracing a multi-faceted approach to promote shared decision-making and effective care plans for children with medical complexity
Lead Organization: Dell Medical School
Family/Youth Engagement Partner: Texas Parent 2 Parent
Clinical Site: Dell Children’s Medical Center
Project
Patients and their families have a lot of shared decision-making when it comes to their care. To support them, the CMC CoIIN Texas team worked together to help guide the development of individualized care plans, used technology-based tools to promote a shared plan of care, and identified patterns of service/supply usage in various areas to maximize efficiency.
Outcomes
The team, guided by its highly engaged Family Workgroup, is designing and piloting an integrated care delivery model and developing a dynamic, living “care plan.” Aspects of the model include engaging families to improve care delivery through shared decision-making, comprehensive care coordination, evaluating service/supply patterns, and monitoring related costs. Members of the Family Workgroup hold leadership roles and drive advances in some areas of clinic operations, identifying essential care plan features, and establishing outcome measures that matter to families.
The team is also using StoryApp to populate the care plan, provide a best practices repository, and translate information into Spanish. This multifaceted approach is aimed to increase the number of improved comprehensive care plans and family engagement in shared-decision making.
