Resources

PREPaRE – Partners In Pediatric Readiness, Emergency Preparedness, and Response Education Virtual Training

Video

Author: Drexel University and St. Christopher’s Hospital for Children, Emergency Medical Services for Children (EMSC), The Parent Education & Advocacy Leadership (PEAL) Center (family-led organization), Hispanos Unidos para Niños Excepcionales (HUNE), Inc. [Hispanics United for Exceptional Children] (family-led organization), with technical support from the Boston University Center for Innovation in Social Work and Health.

Project: Emergency Preparedness and Response (EPR)

Date: May 18, 2026

View

PREPaRE Companion Toolkit

Toolkit

Project: Emergency Preparedness and Response (EPR)

Date: May 18, 2026

Download

Medicaid Work Requirements and Caregiver Exemptions

Tool

Health & Mental Well-being Public Health & Safety

Author: Meg Comeau, Bethlyn Vergo Houlihan, Allyson Baughman, Caroline Parker

Date: March 17, 2026

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Quality of life surveys developed or validated in children or youth with special healthcare needs: a scoping review

Publications

Author: Stefanie G. Ames, Margaret Comeau, Christie Piper, Bethlynn Vergo Houlihan, Kirk Bjella, Hannah Friedman, Steph Lomangino, Isabel K. Taylor, Charlene Shelton & Christopher J. Stille

Project: CoIIN to Advance Care for Children with Medical Complexity

Date: March 1, 2026

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Rooted in Humanity: Urgent action framework for care that matters to CMC, families & clinicians

Toolkit

Human Rights & Social Justice Health & Mental Well-being

Author: Bethlyn Vergo Houlihan, Meg Comeau

Project: The Future of Care for Children with Medical Complexity Virtual Café Series

Date: January 6, 2026

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Beyond 2025 Action Toolkit

Toolkit

Democracy & Social Change Human Rights & Social Justice

Project: Beyond 2025 Action Hub

Date: April 1, 2025

Download

Mapping care pathways: Clinical providers’ perspectives on process maps of HIV service delivery in Uganda

Publications

Author: Jordan M, Ekirapa E, Marton T, Karegyeya G, Maina T, Ssebagereka A, Ssempala R, Ross R, Nandakumar A, & McBain R

Project: Support for Activity-Based Costing

Date: March 20, 2025

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PEPFAR’s mission

Publications

Health & Mental Well-being Human Rights & Social Justice

Author: Nkengasong J, Bunnell R, Nandakumar A, Katz I, Sanhokwe H, & Reid M.

Project: PEPFAR Analytics Hub

Date: December 7, 2024

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Innovative approaches to HIV/AIDS financing: lessons learned from the Sustainable Financing Initiative (SFI)

Publications

Author: Baker S, Hijazi M, Nandakumar AK.

Project: PEPFAR Analytics Hub

Date: May 28, 2024

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Assessing the impact of the president’s emergency plan for AIDS relief on all-cause mortality

Publications

Health & Mental Well-being Human Rights & Social Justice

Author: Gaumer G, Luan Y, Hariharan D, Crown W, Kates J, Jordan M, Hurley C, Nandakumar AK.

Project: PEPFAR Analytics Hub

Date: January 18, 2024

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Pediatrics Supplement: The Collaborative Improvement and Innovation Network for Children With Medical Complexity

Publications

Health & Mental Well-being Human Rights & Social Justice

Author: Meg Comeau, Anna Maria Padlan, Bethlyn Houlihan, Cara Coleman, Christopher Louis, Treeby Brown, Marie Mann

Project: CoIIN to Advance Care for Children with Medical Complexity

Date: January 1, 2024

View

Analysis of economic and educational spillover effects in PEPFAR countries

Publications

Health & Mental Well-being Human Rights & Social Justice

Author: Crown W, Hariharan D, Kates J, Gaumer G, Jordan M, Hurley C, Luan Y, Nandakumar A.

Project: PEPFAR Analytics Hub

Date: December 29, 2023

View

Equity of the HIV epidemic response in 13 African countries

Publications

Health & Mental Well-being Human Rights & Social Justice Public Health & Safety

Author: Gaumer G, Senthil Kumar VS, Crown W, Jordan M, Hurley C, Subramanian M, Nandakumar AK.

Project: PEPFAR Analytics Hub

Date: December 22, 2023

View

Analysis of maternal and child health spillover effects in PEPFAR countries

Publications

Health & Mental Well-being Human Rights & Social Justice

Author: Gaumer G, Crown WH, Kates J, Luan Y, Hariharan D, Jordan M, Hurley CL, Nandakumar A.

Project: PEPFAR Analytics Hub

Date: December 21, 2023

View

Costing of HIV services, Uganda and United Republic of Tanzania

Publications

Health & Mental Well-being Human Rights & Social Justice Public Health & Safety

Author: McBain RK, Jordan M, Kapologwe NA, Kagaayi J, Kiracho EE, Nandakumar AK

Project: Support for Activity-Based Costing

Date: August 22, 2023

View

CMC CoIIN Webinar: Observational Walks and On-Site Prep

Project: CoIIN to Advance Care for Children with Medical Complexity

Date: May 31, 2023

View

CMC CoIIN Convening – State Team Panel Audio Recording

Video

Health & Mental Well-being Human Rights & Social Justice

Project: CoIIN to Advance Care for Children with Medical Complexity

Date: May 31, 2023

View

Podcast: Team Kentucky’s Telehealth Journey (YouTube Link)

Video

Health & Mental Well-being Human Rights & Social Justice

Author: Candace Jarzombek, Rubina Veerakone

Project: CoIIN to Advance Care for Children with Medical Complexity

Date: May 31, 2023

View

Leverage Opportunities + Speak the Medicaid Language: A Workbook for Title V

Tool

Health & Mental Well-being Human Rights & Social Justice

Author: Catalyst Center

Project: The Catalyst Center

Date: May 13, 2023

Download

National Evaluation of HIV Service Resource Allocation in Tanzania

Publications

Health & Mental Well-being Human Rights & Social Justice

Author: McBain RK, Jordan M, Mann C, Ruhago GM, Lee B, Forsythe S, Stewart K, Brown J, Nandakumar A.

Project: Support for Activity-Based Costing

Date: May 5, 2023

View

PREPaRE Co-Training and Partnership Implementation Guide

Supplemental Resource

Author: Houlihan B, Turchi R, King K, Spencer D, Hartley M, Hernandez L, Del Toro Vargas W, Comeau M

Project: Emergency Preparedness and Response (EPR)

Date: May 1, 2023

Download

Strategies to Improve Continuous Medicaid Coverage for Children and Youth with Special Health Care Needs (CYSHCN)

Supplemental Resource

Health & Mental Well-being Human Rights & Social Justice

Author: Catalyst Center

Project: The Catalyst Center

Date: April 25, 2023

Download

Webinar: The Impact of the 2021 Expanded Child Tax Credit (CTC) on Families Raising Children with Disabilities

Video

Author: Catalyst Center, Social Policy Institute at Washington University of St. Louis, Appalachian State University

Project: The Catalyst Center

Date: April 4, 2023

View

Full Report: The Impact of the 2021 Expanded Child Tax Credit (CTC) on Families Raising Children with Disabilities

Report

Public Health & Safety Health & Mental Well-being

Author: Catalyst Center, Social Policy Institute at Washington University of St. Louis, Appalachian State University

Project: The Catalyst Center

Date: March 9, 2023

Download

Policy Brief: The Impact of the 2021 Expanded Child Tax Credit (CTC) on Families Raising Children with Disabilities

Policy brief

Health & Mental Well-being Human Rights & Social Justice

Author: Catalyst Center, Social Policy Institute at Washington University of St. Louis, Appalachian State University

Project: The Catalyst Center

Date: March 9, 2023

Download

Health Home Services for Medicaid Enrolled Children with Medically Complex Conditions

Policy brief

Health & Mental Well-being Human Rights & Social Justice

Author: Catalyst Center

Project: The Catalyst Center

Date: February 17, 2023

Download

Medicaid and CHIP: A Tutorial on Coverage for Children and Youth with Special Health Care Needs (CYSHCN)

Tutorial

Human Rights & Social Justice Health & Mental Well-being

Author: Catalyst Center

Project: The Catalyst Center

Date: January 1, 2023

Download

State Statutes & Regulations on Dietary Treatment of Disorders Identified Through Newborn Screening

Report

Health & Mental Well-being Human Rights & Social Justice

Author: Catalyst Center

Project: The Catalyst Center

Date: January 1, 2023

Download

Slide Deck: Serving CYSHCN Through State Medicaid Managed Care and Title V Partnerships

Slide deck

Health & Mental Well-being Human Rights & Social Justice

Author: NASHP

Project: The Catalyst Center

Date: January 1, 2023

Download

Supplemental Resources: Medicaid Managed Care and Children and Youth with Special Health Care Needs (CYSHCN)

Supplemental Resource

Health & Mental Well-being Human Rights & Social Justice

Author: NASHP

Project: The Catalyst Center

Date: January 1, 2023

Download

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Results

PREPaRE – Partners In Pediatric Readiness, Emergency Preparedness, and Response Education Virtual Training

PREPaRE Companion Toolkit

Medicaid Work Requirements and Caregiver Exemptions

Quality of life surveys developed or validated in children or youth with special healthcare needs: a scoping review

Rooted in Humanity: Urgent action framework for care that matters to CMC, families & clinicians

Beyond 2025 Action Toolkit

Mapping care pathways: Clinical providers’ perspectives on process maps of HIV service delivery in Uganda

PEPFAR’s mission

Innovative approaches to HIV/AIDS financing: lessons learned from the Sustainable Financing Initiative (SFI)

Assessing the impact of the president’s emergency plan for AIDS relief on all-cause mortality

Pediatrics Supplement: The Collaborative Improvement and Innovation Network for Children With Medical Complexity

Analysis of economic and educational spillover effects in PEPFAR countries

Equity of the HIV epidemic response in 13 African countries

Analysis of maternal and child health spillover effects in PEPFAR countries

Costing of HIV services, Uganda and United Republic of Tanzania

CMC CoIIN Webinar: Observational Walks and On-Site Prep

CMC CoIIN Convening – State Team Panel Audio Recording

Podcast: Team Kentucky’s Telehealth Journey (YouTube Link)

Leverage Opportunities + Speak the Medicaid Language: A Workbook for Title V

National Evaluation of HIV Service Resource Allocation in Tanzania

PREPaRE Co-Training and Partnership Implementation Guide

Strategies to Improve Continuous Medicaid Coverage for Children and Youth with Special Health Care Needs (CYSHCN)

Webinar: The Impact of the 2021 Expanded Child Tax Credit (CTC) on Families Raising Children with Disabilities

Full Report: The Impact of the 2021 Expanded Child Tax Credit (CTC) on Families Raising Children with Disabilities

Policy Brief: The Impact of the 2021 Expanded Child Tax Credit (CTC) on Families Raising Children with Disabilities

Health Home Services for Medicaid Enrolled Children with Medically Complex Conditions

Medicaid and CHIP: A Tutorial on Coverage for Children and Youth with Special Health Care Needs (CYSHCN)

State Statutes & Regulations on Dietary Treatment of Disorders Identified Through Newborn Screening

Slide Deck: Serving CYSHCN Through State Medicaid Managed Care and Title V Partnerships

Supplemental Resources: Medicaid Managed Care and Children and Youth with Special Health Care Needs (CYSHCN)