This is my archive

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Full Report: The Impact of the 2021 Expanded Child Tax Credit (CTC) on Families Raising Children with Disabilities

The 2021 expanded Child Tax Credit (CTC) provided temporary enhancements to the existing CTC for the tax years 2021 and 2022, including increasing the credit’s maximum value and removing the minimum income criterion for refundability. As a result, even households with no income were eligible for the full credit. These…

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Impact of the Partners for Children Pilot Program on Medicaid Utilization and Expenditures: Follow Up Report

This report on the Michigan Partners for Children program is a helpful cost effectiveness resource, referenced in Steve Fitton’s paper, A Perspective on Cost Effectiveness in Pediatric Comprehensive Complex Care Service Models.

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Hopes and Dreams, Family Vision Statements, and Actionable Goals

This document for families describes the differences among hopes and dreams, family vision statements, and actionable goals, and describes where each fit in the shared plan of care.

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Learnings from our CoIIN Project: Team Oregon

Team Oregon summarizes their project focus and major learnings related to healthcare transition for young adults with medical complexity.

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Successful healthcare transition for youth with special healthcare needs is a team effort

A description of the challenges transitioning medically complex young adults from pediatric to adult care systems, in the words of three parents. This report was initially published in The Nurse Practitioner.

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Year 2 Accomplishments to Date

This document provides a summary of the CMC CoIIN and descriptions of state team accomplishments and products/outputs created during years 1 and 2 of the project.

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Year 3 Accomplishments to Date

This document briefly summarizes the CMC CoIIN project, each state’s accomplishments as of Year 3, and products and outputs created through the project.

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Pediatric Primary Care Provider Concerns and Preparation for Adult Healthcare Transfer of Medically Complex Young Adults

Findings from Oregon team’s CoIIN QI project presented at the Adolescent Health Initiative virtual meeting 2021.

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State Statutes & Regulations on Dietary Treatment of Disorders Identified Through Newborn Screening

Every state has a Newborn Screening (NBS) Program which screens newborns for a variety of health conditions, including selected inborn errors of metabolism (IEMs) and other genetic disorders. Individuals with genetic conditions identified through NBS programs often require Modified Low Protein Foods (MLPFs), medical foods, dietary supplements, or other dietary…

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Issue Brief: The Affordable Care Act and Children and Youth with Autism Spectrum Disorder and Other Developmental Disabilities

The Catalyst Center has developed a new report for the Association of Maternal & Child Health Programs (AMCHP) that offers a brief description of selected provisions in the ACA that have implications for children with ASD/DD. It describes how state Title V maternal and child health (MCH) programs can maximize…