This is my archive

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Action-oriented tools to build family trust for improved care for children with medical complexity

This presentation, delivered at the National Center for Complex Health and Social Needs 2021 Conference, details how the CMC CoIIN adapted to measure families’ needs and introduces the Family Engagement in Systems Assessment Tool (FESAT) that was created in partnership with Family Voices.

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Family Focus Group Infographics

These infographics, aimed at providers, illustrate the five themes discovered through focus group interviews with families with CMC. The themes are types of support needed, the care team, improve care coordination, focus on the whole family, and care accessibility.

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The Category of Us: Racism and Ableism’s Impact on Families with Children with Medical Complexity

This presentation discusses intersectionality and oppression and the personal story of Debbi Harris, a representative of Family Voices Minnesota. It was originally presented at the National Center for Complex Health and Social Needs 2021 Conference.

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Children with Medical Complexity and School Reopening Amidst COVID-19

This presentation, presented at the November 11, 2020 CYSHCNet Steering Committee meeting, covers concerns and early learnings around CMC returning to school in addition to resources on this topic.

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Caring for Children with Medical Complexity Through Transformative Family Partnership

This presentation, created for a National Center for Complex Health And Social Needs webinar, discusses findings from family focus groups conducted by CoIIN teams and how the Massachusetts and Texas teams used these findings to support family partnership.

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Tips for Recruitment

This document provides tips for creating recruitment documents, developing a recruitment process, and identifying potential participants. It was created based on discussion from the January 2019 CoIIN State Team Webinar.

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Effective Family Partnership Tools to Drive Global and Local Improvements: Learnings from the CMC CoIIN

This poster, created for the AMCHP 2021 conference, details the Family Engagement in Systems Assessment Tool (FESAT) process with CoIIN teams, overall FESAT findings from 3 rounds of assessment spanning the pandemic, and initial state team local action plans for targeted improvement based on the FESAT. It also shows the…

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Tips for designing an inclusive interprofessional ECHO

This infographic, developed in partnership between the American Academy of Pediatrics and the Collaborative Improvement and Innovation Network to Advance Care for Children with Medical Complexity (CMC CoIIN), is the first of a series to be released on learnings from the Children with Medical Complexity & COVID-19 Extension for Community…

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Family-centered care for children with medical complexity: A goal-planning initiative

This document describes a family-centered goal-planning initiative, prior to the CMC CoIIN work. The learnings informed Team Minnesota’s work on the CoIIN.

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Care Coordination for Children with Medical Complexity

Manuscript describing models of complex care management for CMC, description of Gillette’s complex care program, and Team MN participation in the CMC CoIIN.