Presentation about the nonprofit agency Texas Parent to Parent and its services to multiple service coordinators in Texas that work at Managed Care Organizations across the state.

This slide deck describes the unique delegation arrangement that Children’s Comprehensive Care shares with BCBS STAR Kids (Managed Care Organization) to deliver service assessment and service coordination by the RN case manager at the medical home. The delegation funds non-billable case management services and integrates the assessment and service coordination…

This article describes one health system’s attempt at introducing staff to the lived experience of parents of CMC, from the viewpoint of a parent of medically fragile child. She describes herself as one of many ‘uber’ parents, common in children’s hospitals. Originally published in the Pediatric Palliative Care and Hospice…

Sample of the parent view of the plan of care and role clarification.

Colorado Durable Medical Equipment eligibility, documentation, and process for diapers, wheelchairs, supplemental oral nutrition, enteral nutrition, suction machine, disability placards, and synagis.

Debbi Simmons Harris tells the story of the presentation on racism and The Category of Us. This commentary was originally published in the Complex Care Journal.

A description of the challenges transitioning medically complex young adults from pediatric to adult care systems, in the words of three parents. This report was initially published in The Nurse Practitioner.

Poster presentation at Academy Health D & I Conference, highlighting value/impact of CoIIN and Family Engagement on Team Minnesota work.

This document provides a summary of the CMC CoIIN and descriptions of state team accomplishments and products/outputs created during years 1 and 2 of the project.

This slide deck was presented at the April 27, 2019 Pediatric Academic Societies meeting of the Complex Care Special Interest Group. It summarizes the CMC CoIIN and provides an overview of the Team Indiana project.