This is my archive

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The Category of Us: Racism and Ableism’s Impact on Families with Children with Medical Complexity

This presentation discusses intersectionality and oppression and the personal story of Debbi Harris, a representative of Family Voices Minnesota. It was originally presented at the National Center for Complex Health and Social Needs 2021 Conference.

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Children with Medical Complexity and School Reopening Amidst COVID-19

This presentation, presented at the November 11, 2020 CYSHCNet Steering Committee meeting, covers concerns and early learnings around CMC returning to school in addition to resources on this topic.

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Caring for Children with Medical Complexity Through Transformative Family Partnership

This presentation, created for a National Center for Complex Health And Social Needs webinar, discusses findings from family focus groups conducted by CoIIN teams and how the Massachusetts and Texas teams used these findings to support family partnership.

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Tips for Recruitment

This document provides tips for creating recruitment documents, developing a recruitment process, and identifying potential participants. It was created based on discussion from the January 2019 CoIIN State Team Webinar.

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Effective Family Partnership Tools to Drive Global and Local Improvements: Learnings from the CMC CoIIN

This poster, created for the AMCHP 2021 conference, details the Family Engagement in Systems Assessment Tool (FESAT) process with CoIIN teams, overall FESAT findings from 3 rounds of assessment spanning the pandemic, and initial state team local action plans for targeted improvement based on the FESAT. It also shows the…

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Tips for designing an inclusive interprofessional ECHO

This infographic, developed in partnership between the American Academy of Pediatrics and the Collaborative Improvement and Innovation Network to Advance Care for Children with Medical Complexity (CMC CoIIN), is the first of a series to be released on learnings from the Children with Medical Complexity & COVID-19 Extension for Community…

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The American Rescue Plan Act: Opportunities for Improving Home- and Community-Based Services for Children and Youth with Special Health Care Needs

The American Rescue Plan Act (ARPA) was signed into law on March 11, 2021. Provisions in this legislation have the potential to expand and strengthen Home- and Community-Based Services (HCBS) for children enrolled in Medicaid, in turn strengthening the systems of services for children and youth with special health care…

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PDF: Strategies for State Title V and Medicaid Programs to Promote Health Equity for Children of Color with Special Health Care Needs

State Title V and Medicaid programs provide services for children and youth with special health care needs (CYSHCN) to support their physical, behavioral, and developmental care. States are also advancing health equity goals to address disparate outcomes experienced by people of color. With evidence of existing inequities laid bare by…

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Strengthening Title V – Medicaid Managed Care Collaborations to Improve Care for CYSHCN

Forty-seven states use some form of managed care to serve children and youth with special health care needs (CYSHCN) enrolled in Medicaid. State Title V programs, which are required to use 30 percent of their funds for programs for CYSHCN and their families, may also serve these same children. By…

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Webinar Recording: The Expanded Child Tax Credit: Implications for Families Raising Children and Youth with Special Health Care Needs (CYSHCN)

The recent Child Tax Credit (CTC) expansion is expected to improve the economic security of millions of families in the U.S., including families raising children and youth with special health care needs (CYSHCN). While many families will receive the expanded tax credit automatically, others of the most vulnerable families need…