In Uganda, where HIV prevalence remains high, innovative strategies are sought to combat the epidemic. In 2020, Uganda joined the Activity-Based Costing and Management (ABC/M) Initiative, a multi-country effort to monitor resource allocation and funding for HIV services. As part of this Initiative, data collectors generated process maps, specific…

This paper introduces a number of existing Medicaid policy instruments and explains how to use them more effectively for programs and providers dedicated to serving CMC. Because Medicaid programs are so variable across the nation, we also provide a diagnostic approach to understanding each state’s Medicaid policy and service delivery…

This article, published by AMCHP, features the CMC CoIIN state team journey maps that were created during year 3 of the project. These maps helped state teams visualize their journeys and opportunities for improvement.

This article describes one health system’s attempt at introducing staff to the lived experience of parents of CMC, from the viewpoint of a parent of medically fragile child. She describes herself as one of many ‘uber’ parents, common in children’s hospitals. Originally published in the Pediatric Palliative Care and Hospice…

This study aimed to explore the experiences of Oregon families of YAMC who had recently transitioned to adult health care providers, and obtain recommendations for transition from family members, to inform the development of the CoIIN quality improvement project.

This article, published in the December 2015 issue of the Maternal and Child Health Journal, describes the process and results of a survey of parents and caregivers whose children with disabilities were enrolled in Louisiana Family Opportunity Act (FOA) Medicaid Buy-in program. Results suggest that the Louisiana FOA program fills…

This article, published in the Journal of Child Health Care, describes the process and results of a survey of parents and caregivers whose children with disabilities were enrolled in CommonHealth, the state’s Medicaid Buy-in program. Results suggest that the MassHealth CommonHealth program improves access to care for children with disabilities…

There is broad agreement that increasing the cost-effectiveness and quality of health care services, thereby achieving greater value, is imperative given this country’s current spiraling costs and poor health outcomes. However, how individuals or stakeholder groups define value may differ significantly. To date, the consumer perspective has been underrepresented in…

With the increasing emphasis on value-based purchasing (VBP), policymakers must critically analyze the potential impact for children and youth with special health care needs (CYSHCN), because this group of children, by definition, uses more health care services than other children and inevitably incurs higher per person costs. We provide a…

There is significant concern about the financial burdens of new insurance plan designs on families, particularly families with children and youth with special health care needs (CYSHCN). With value-based insurance design (VBID) plans growing in popularity, this study examined the implications of selected VBID cost-sharing features on children. This article…