Leverage Opportunities + Speak the Medicaid Language: A Workbook for Title V focuses on Medicaid as an important element of the system of services for Children and Youth with Special Health Care Needs (CYSHCN), as it is the single largest payor for CYSHCN and provides a robust benefits package for…

Children with medically complex conditions (CMC) rely on a variety of services both in and outside of the health care system. Comprehensive care planning, assuring access, and coordinating these services for CMC is critical for their well-being. The Centers for Medicare and Medicaid Services (CMS) created a state plan option…

Transportation is essential for children and youth with special health care needs (CYSHCN) to regularly access health care and support chronic health conditions that require ongoing treatment. However, CYSHCN are significantly more likely to delay care due to transportation barriers than children and youth without a special health care need.

This paper introduces a number of existing Medicaid policy instruments and explains how to use them more effectively for programs and providers dedicated to serving CMC. Because Medicaid programs are so variable across the nation, we also provide a diagnostic approach to understanding each state’s Medicaid policy and service delivery…

This brief presents evidence on the cost effectiveness of comprehensive service delivery models to improve care for children with medical complexity (CMC) and describes the unique challenges in cost effectiveness evaluations for this population. It also points to Medicaid policy opportunities that provide financial support for a developmental period, whether…

This slide deck, originally presented at the Association of Maternal and Child Health Programs’ 2021 virtual conference, outlines a number of policy opportunities for Title V programs to utilize in sustaining funding for pediatric complex care. The presentation breaks down these policy opportunities into broad, targeted, eligibility, and reimbursement based…

In April, May, and June of 2022, the Catalyst Center and the National Coordinating Center for the Regional Genetics Networks, two programs supported by the Health Resources and Services Administration (HRSA), hosted a three-part webinar series to help the genetics community and other interested parties better understand how to navigate…

Care coordination can help children and youth with special health care needs (CYSHCN) and their families navigate the health care system while avoiding unnecessary costs and duplicative services. States have longstanding efforts to finance care coordination services for CYSHCN and their families through Medicaid, the state Title V Maternal and…

As the single largest source of health coverage for Children and Youth with Special Health Care Needs (CYSCHN), with robust benefits and cost-sharing limits, Medicaid provides critical coverage of health care services to CYSHCN. State Title V programs are uniquely positioned to collaborate with Medicaid to promote access to the…

This report on the Michigan Partners for Children program is a helpful cost effectiveness resource, referenced in Steve Fitton’s paper, A Perspective on Cost Effectiveness in Pediatric Comprehensive Complex Care Service Models.